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Patient Stories
This page is particularly for newly diagnosed patients who are still coming to terms with the huge change in their lives.
We believe that it is helpful if these patients can hear from other patients
Our private Facebook support group enables patients and their families to exchange information and ask questions. The regional lunches that we hold bring together patients and their families in a social setting and puts faces to names. Our Annual Conference enables patients and their families to hear from leading ALK+ experts and to meet and exchange experiences with other patients and their families in a relaxed setting over a weekend.
On this page, members of our support group share their real-life stories which show the ups and downs that they have experienced. The message to be taken from these stories is that there is HOPE. There have been amazing improvements in the treatment of ALK-positive LC since most these patients were diagnosed and it can be expected that there will many more improvements in the years to come.
